About the research

Towards being heard

Navigating primary care for those with endometriosis, adenomyosis and chronic pelvic pain.

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Kia ora, I’m Amy Hopper, a student of the Master of Technological Futures programme at academyEX.

It took 18 years, 14 health professionals and one Google search to finally be diagnosed with endometriosis and adenomyosis. By the time I was diagnosed, it was stage four. My pelvic organs had fused together, the disease had spread to my bowel and appendix.

In Aotearoa New Zealand, it now takes almost 10 years on average to be diagnosed with endometriosis. My research looks at one part of that journey.

The research question

How do women with chronic pelvic pain, endometriosis, and adenomyosis navigate primary care to advocate for their symptoms, and what support do they identify as essential to be heard and acted upon?

Currently recruiting

Could you take part?

Two short, anonymous surveys — one for people living with symptoms, one for the health professionals who see them.

Take the survey